As You Make Your Vacation Plans This 12 months, Please Suppose Of My Lily

We’ve reached the purpose, but once more, that if Lily must go inpatient, she’d be admitted alone. She would probably be airlifted to a hospital that we’ve by no means been to earlier than, as our dwelling hospital and lots of others in our state are overflowing — and she or he’d be by herself. Due to the sheer recklessness and selfishness of others, my two yr previous, trached micropreemie could be in a very overseas place with out me or her dad to advocate for her and her plentiful medical wants.

Courtesy of Lily Wolff

Seeing posts from SO many individuals about “dwelling your life” and “not dwelling in worry” is appalling and hurtful. You’re selecting to danger the lives of your dad and mom, grandparents, and neighborhood members like Lily with the intention to present how “sturdy” you might be, whereas our youngster’s potential to entry fundamental healthcare is in jeopardy.

Courtesy of Lily Wolff

I’m nonetheless continuously advised that the susceptible ought to simply keep dwelling, and/or Lily’s well being isn’t anybody’s downside however ours. We HAVE to go to the pharmacy for drugs and different life-sustaining provides for Lily. We’ve groceries, and many others., delivered, however “simply keep dwelling” isn’t a luxurious that we’ve got on daily basis. Lily wants entry to medical companies far past COVID therapy — she has an open gap in her neck to assist her breathe, weak lungs, and a number of other different medical wants stemming from her untimely delivery. When our hospital system is struggling as it’s, we danger delayed response to the entire medical emergencies that may occur every day — pandemic or not.

Courtesy of Lily Wolff

As you make your vacation plans, I hope that you simply think about individuals in your neighborhood like Lily who want the hospital mattress, the ventilator, the suction tubing, and most significantly, the nurses and medical doctors who’re already stretched too skinny. That is STILL the time to think about the better good over your “private liberties.” I don’t want your ideas and prayers. I would like you to forgo Thanksgiving and keep dwelling.

Please don’t inform me that you simply care about my youngster or different medically fragile individuals like her after which proceed to stay your life like there isn’t a pandemic.

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